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Community Voice

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Community Voice is a way for you to use your voice and make a difference. When you join, you’ll receive opportunities to partner with the Foundation, researchers, and other organizations to share your experiences, perspectives, and opinions on a variety of CF related topics. Make an impact by bringing your insights and priorities to the forefront of CF research, care, and programs.

Who should join?

Community Voice is for any individual, age 13 or older, who has CF or is a family member of a person with CF. Each person's experience is unique, so it's critical to hear from as many people as possible. Please note that most Community Voice projects are applicable to those who are living in the United States. If you live outside of the United States, you can sign up to receive updates on how CF community input is impacting research, care, and programs.

What does participation look like?

As a member, you will receive customized opportunities to participate regularly based on your interests via email. You can choose which projects and how often you contribute. There is no minimum participation required to be a member. You will be invited to share your opinion through quick online surveys, and you might have additional opportunities to apply to join focus groups or serve on committees.

Do you have additional questions?

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